Grand Edits with Gwen Sternhagen: Revising Life with an SMA-diagnosed Child

All of life is a draft. We look ahead with expectations and hopes of what the future will bring, but often, despite our choices, despite our resolve, events or circumstances beyond our control force us to rethink our plans. We edit our pages, making grand revisions, accepting the twists and turns of our story, doing all we can with what we are given, determined to create a narrative that is beautiful, albeit messy — our own shabby, yet shimmering story. Continue reading